Dancing with My Disabilities!

Title: Dancing with My Disabilities! I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes, you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances, dances hip hop, performs, teaches dance to children of all ages and abilities, teaches belly dance fitness classes to adult women, teaches chair belly dance movement classes to people with mobility issues and disabilities, and takes a Pure Barre class as well! I still have pain, but I want to blog about how I have fun too! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain and being a mom to a 13-year-old son. I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, axial spondylitis, Sjogren's, fibromyalgia, hEDS, POTS, MCAS, vascular/ocular/hemiplegic migraines, pseudotumor cerebri, trigeminal neuralgia, occipital neuralgia, endometriosis, and chronic shingles. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Fourteen years ago, my spine orthopedic surgeon told me I had a small amount of inflammatory arthritis in my SI joint. The question was if the spinal involvement was due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Now, they have an updated term, Axial Spondylitis, which fits my symptoms and diagnostic proof. Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003; my right shoulder replaced in March of 2010. I gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012, and I began belly dancing two years prior to my right hip replacement surgery. Yes that's correct! I began belly dancing in 2010, just after my shoulder replacement, before my son was born. I performed for the first time in 2012, five days prior to my right hip replacement surgery. Pain is still another part of my life. It is just a question of when, where, and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time dancing, teaching, and performing! I began dancing with a troupe in February of 2014, Seshambeh Dance Company. I now take a Pure Barre class on Monday mornings, teach ballet, tap, and creative movement on Monday evenings to children of all ages and abilities, take a hip hop class with all adult women on Tuesdays and Wednesdays, teach a belly dance fitness class on Thursdays to all adult women, and teach a chair belly dance movement class to people with mobility issues and disabilities as often as I possibly can. Join me in my journey! At times, I take 16 to 20 pills a day. I give myself an injection each week on Fridays for my autoimmune/autoinflammatory arthritis diseases. Just when one thing is doing better, something else goes downhill! My attitude, however, is always going uphill! I am 49 years old, have been married for 24 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Blog Title: Dancing with My Disablities!

Formerly Now Read My HIPS, and before that, I Already Gave My Right Arm to Be Ambidextrous.
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Dancing with My Disabilities

Dancing with My Disabilities
Asmara "Beautiful Butterfly"

Blog with Integrity

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Saturday, March 13, 2010

The Pep Talk Worked!!!



So I didn't get up quite as early as I wanted to, but I did get up and go straight to the gym after feeding the fur kids, giving Max his water and his A.M. insulin, and eating some breakfast and taking my A.M. meds as well.

I almost rolled over and stayed in bed, but I knew that I would feel terrible about not going after talking myself up about being able to go. I was thinking so positive before I went to bed, that I just HAD to go!

I began in the hot tub because my right elbow was double its size this morning, hot, and in a lot of pain. I knew that if I just jumped right into swimming, I would just hurt it more. I sat near one of the jets and let the hot water hit my sore elbow. Wow! It hurt like hell! I thought that I might as well kick my legs and get some exercise while I was in the hot tub. I did this for about 25 minutes.

Then I went swimming!!! I swam 10 laps, which is about 1/2 of what I usually do, but my elbow started to throb, and I knew it was time to quit.

Ya know when I swim laps, I basically make up my own strokes because my range of motion is so limited. I take my glasses off and set them on the side of the pool, and basically go back and forth doing a frog-like swim and then keeping the same arm motion as the frog swim, I continue going back with a kicking motion. This changes things up a bit. I can feel it in my muscles, so I know the movements work as exercise. I choose not to go underwater, though. It is just a self-choice. I have goggles, but I can't see anything without my glasses anyway, so why make things even more difficult by putting my head under the water.

I love the peacefulness of being in the water. I know it's exercise, but I almost feel like I become a part of the water. It is such a wonderful feeling. Floating, almost gliding across the top of the water. I am a very delicate swimmer because I used to be a ballerina. It is very obvious in my swimming. I make no noise when I swim, and the water barely moves around me. I never splash any water up out of the pool or up into the air. I swim without a sound--silence...There is something so graceful about my swimming. It's almost like swim-dancing. I am overcome with serenity, peace, and a feeling of being held. It feels as though the water is holding me up. The water will not drop me. My range of motion is so much better in the water. I have so much more energy in the water. I feel like an athlete almost. It is like being taken to another space in time, like another dimension, where I can do all of this with no pain, without needing help, and feeling like I have a special talent or ability. I feel invincible!!

Today, it was very crowded at the pool. I didn't even notice, because I take my glasses off. I can't see anything without my glasses. I am not bothered by all the people in the water or stressed out by all the people waiting for a lane to open up for them to swim in. I just continue to swim in my alternate universe...

Then, I stretch my legs and my feet before I exit the pool. But slowly as I climb out of the water onto land, my true self emerges. I begin to lose my well-balanced body. The muscles and joints begin to stiffen and get sore. I start to transform from a healthy-feeling 35 year old into an aged, 80 year old woman. My limping body makes it's way toward my towel with its past surgery scars on its legs, hip, and shoulders. "Who is this person?" I ask myself...

Just as I'm drying myself off, a dark and handsome young man approaches me. He tells me that I am the most beautiful being that he has ever seen. Of course, inside I am laughing. Me, the most beautiful being? Obviously, HE needs glasses more than I do...I say thank you to be polite. He then proceeds to ask it I'm married. OMG! He is seriously hitting on me!!!

This is when I realized that the way I feel is not what other people necessarily see. Although I do have surgery scars--old scars which are not that visible anymore, although I see them still. I am still beautiful. Imagine that!!

What I learned about today is that if I continue to take care of myself, people will see that I love myself. They will begin to believe in that alternate universe that I believe in when I'm swimming. If I begin to believe enough that I am that person, even out of the water, people will see that beauty. They will feel that love for life, that peace and serenity that I feel when I'm swimming.

I will continue to swim and take care of myself. You can't imagine how good it makes me feel. Also, it's always nice to have a dark, handsome man try to pick you up at the gym when you are at your most vulnerable moment and in a swim suit besides!!!!

2 comments:

Unknown said...

Holy Cow I wish I had a pool, and a dreamy pool boy!!!! I've really wanted to find somewhere to swim, so far, nothing I can afford has revealed itself to me. I love this story, so much fun!

Dana Asmara Morningstar-Marton said...

Well, Kelbi, you can swim here at my apt. complex all summer as much as you want. When I swim, it's like I have the whole pool to myself, and there are 2 pools, so you could choose the other one if the one on our side is too crowded with people. I never have anyone come visit to go swimming w/ me, so I usually swim alone. Would love some company!!!

2012

2012
Performance 5 days before my Hip Replacement Surgery!

2012

2012
Performance 5 Days Prior to my Hip Replacement Surgery.

Belly Dance

Belly Dance
Before the Performance 5/6/12
Watch live streaming video from arthritisfoundation at livestream.com