Dancing with My Disabilities!

Title: Dancing with My Disabilities! I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes, you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances, dances hip hop, performs, teaches dance to children of all ages and abilities, teaches belly dance fitness classes to adult women, teaches chair belly dance movement classes to people with mobility issues and disabilities, and takes a Pure Barre class as well! I still have pain, but I want to blog about how I have fun too! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain and being a mom to a 13-year-old son. I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, axial spondylitis, Sjogren's, fibromyalgia, hEDS, POTS, MCAS, vascular/ocular/hemiplegic migraines, pseudotumor cerebri, trigeminal neuralgia, occipital neuralgia, endometriosis, and chronic shingles. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Fourteen years ago, my spine orthopedic surgeon told me I had a small amount of inflammatory arthritis in my SI joint. The question was if the spinal involvement was due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Now, they have an updated term, Axial Spondylitis, which fits my symptoms and diagnostic proof. Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003; my right shoulder replaced in March of 2010. I gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012, and I began belly dancing two years prior to my right hip replacement surgery. Yes that's correct! I began belly dancing in 2010, just after my shoulder replacement, before my son was born. I performed for the first time in 2012, five days prior to my right hip replacement surgery. Pain is still another part of my life. It is just a question of when, where, and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time dancing, teaching, and performing! I began dancing with a troupe in February of 2014, Seshambeh Dance Company. I now take a Pure Barre class on Monday mornings, teach ballet, tap, and creative movement on Monday evenings to children of all ages and abilities, take a hip hop class with all adult women on Tuesdays and Wednesdays, teach a belly dance fitness class on Thursdays to all adult women, and teach a chair belly dance movement class to people with mobility issues and disabilities as often as I possibly can. Join me in my journey! At times, I take 16 to 20 pills a day. I give myself an injection each week on Fridays for my autoimmune/autoinflammatory arthritis diseases. Just when one thing is doing better, something else goes downhill! My attitude, however, is always going uphill! I am 49 years old, have been married for 24 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Blog Title: Dancing with My Disablities!

Formerly Now Read My HIPS, and before that, I Already Gave My Right Arm to Be Ambidextrous.
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Dancing with My Disabilities

Dancing with My Disabilities
Asmara "Beautiful Butterfly"

Blog with Integrity

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Friday, March 12, 2010

Time to Just Be Still...Talk to Myself...Give Myself A Pep Talk!


There are just some days where it is just nice to never get out of your PJ's, and this was one of them. I was not in a lot of pain today. I was more fatigued than anything else--and just so tired...

Sometimes on days like this it feels like my body is rejuvenating itself. It's like a home spa day. I never left the house, but I did go outside to take my fur kids out to go potty.

It has been raining outside today all day, and I'm talking a thunderstorm and flooding, no light drizzle. There were even areas with hail. I for one enjoy listening to the rain, but usually, the body would rather take a pass. Today was not so bad, except I could have slept all day long!

Yesterday was my I.V. infusion day at the infusion center at the hospital. I felt so tired when I left there, and I even took less of the benadryl than usual. I don't know, perhaps my life is just catching up with me. Perhaps all the travel that I've been doing, and preparing for the adoption of our baby, and getting ready for the shoulder replacement surgery, and now with my dog Max's new diagnosis of diabetes--life is just tiring. It seems reasonable. I for one am not a "normal" person either. The everyday stresses of life can be quite a lot for me to handle with all my chronic illnesses. I usually take on too much, with full knowledge. And why, you may ask? Well, I'm a control freak, type A personality, OCD, who tends to overdo everything. I know full well when I'm on the verge of getting overworked, and yet I push it further and further to see if I can get through just a little bit more.

I'm really trying to take better control over myself though. I don't want to wear myself out like this. I am going to do better. I'm in bed typing this post, and then I'm going to sleep. I will not think of anything else to do before going to sleep, except taking my pills of course. Then I will get up bright and early and go to the gym and go swimming. That is what I will do! That a girl! Take care of yourself, Dana! Exercise is good for me, and swimming is great for my joints. I really need to keep up with this until my surgery because when the surgery date approaches, it will be a while before I can do my normal exercise routine again. So yes, I will do that!

Great pep talk!

Now if I could do this for myself every single day, sometimes several times a day, imagine how much better I would take care of myself. Yes, I will do that too! I will begin talking to myself on a daily schedule, several times a day! Add that to my agenda. Now I sound crazy. But no, I haven't lost my mind, I am finally gaining perspective. I have to keep in touch with myself, or I will never get through this waiting...

Then, I will totally lose it when the day of the surgery arrives...

Again, great talk, Dana! Let's do this again tomorrow! Good night, and sweet dreams!

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2012

2012
Performance 5 days before my Hip Replacement Surgery!

2012

2012
Performance 5 Days Prior to my Hip Replacement Surgery.

Belly Dance

Belly Dance
Before the Performance 5/6/12
Watch live streaming video from arthritisfoundation at livestream.com