Dancing with My Disabilities!

Title: Dancing with My Disabilities! I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes, you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances, dances hip hop, performs, teaches dance to children of all ages and abilities, teaches belly dance fitness classes to adult women, teaches chair belly dance movement classes to people with mobility issues and disabilities, and takes a Pure Barre class as well! I still have pain, but I want to blog about how I have fun too! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain and being a mom to a 13-year-old son. I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, axial spondylitis, Sjogren's, fibromyalgia, hEDS, POTS, MCAS, vascular/ocular/hemiplegic migraines, pseudotumor cerebri, trigeminal neuralgia, occipital neuralgia, endometriosis, and chronic shingles. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Fourteen years ago, my spine orthopedic surgeon told me I had a small amount of inflammatory arthritis in my SI joint. The question was if the spinal involvement was due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Now, they have an updated term, Axial Spondylitis, which fits my symptoms and diagnostic proof. Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003; my right shoulder replaced in March of 2010. I gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012, and I began belly dancing two years prior to my right hip replacement surgery. Yes that's correct! I began belly dancing in 2010, just after my shoulder replacement, before my son was born. I performed for the first time in 2012, five days prior to my right hip replacement surgery. Pain is still another part of my life. It is just a question of when, where, and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time dancing, teaching, and performing! I began dancing with a troupe in February of 2014, Seshambeh Dance Company. I now take a Pure Barre class on Monday mornings, teach ballet, tap, and creative movement on Monday evenings to children of all ages and abilities, take a hip hop class with all adult women on Tuesdays and Wednesdays, teach a belly dance fitness class on Thursdays to all adult women, and teach a chair belly dance movement class to people with mobility issues and disabilities as often as I possibly can. Join me in my journey! At times, I take 16 to 20 pills a day. I give myself an injection each week on Fridays for my autoimmune/autoinflammatory arthritis diseases. Just when one thing is doing better, something else goes downhill! My attitude, however, is always going uphill! I am 49 years old, have been married for 24 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Blog Title: Dancing with My Disablities!

Formerly Now Read My HIPS, and before that, I Already Gave My Right Arm to Be Ambidextrous.
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Dancing with My Disabilities

Dancing with My Disabilities
Asmara "Beautiful Butterfly"

Blog with Integrity

BlogWithIntegrity.com
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Monday, October 18, 2010

The Year I Became A Zombie...Trick or Treat!

The next edition of the blog carnival will be posted on Monday, October 18. The theme: Trick or Treat! Halloween is coming soon and we started thinking, wow, medicine is like Editrix Jenni's favorite holiday. Sometimes you get treats, and sometimes you get tricks. We'd love to hear about the ups and downs of your experience. Show us the highs and lows, and the surprises!


Palms sweaty, heart racing, tremors, chest tightness, high blood pressure, nervousness, anxiety, agitation, urinary incontinence, goose bumps, rapid breathing, chills, restlessness, panic atticks, inability to sit still, nightmares, unusual dreaming, abnormal sleep pattern, insomnia! These could be the same effects before, during and after a scary movie or a haunted house. These are examples of side effects from different medications.  I figured this topic would be fitting with Halloween around the corner. When you have chronic illnesses, you have many different medications to take. With the many medications, you have many side effects. Because you have so many side effects, you have to sometimes take even more medications to counteract the awful effects. And sometimes, you can even make more side effects from the added medications to counteract those original side effects. It can become an endless cycle!





I was once misdiagnosed with depression when I went to the doctor with hip, knee and shoulder pain. I told the doctor I couldn't walk up the back steps. The doctor was thinking it was possible that I could be showing signs of multiple sclerosis. An MRI and CT scan were performed. They came back negative. The doctor told me that there were no lesions. He said that I most likely was having symptoms of depression because it can cause pain as well as the more common symptoms. I was sent to a psychiatrist and was indeed diagnosed with depression. By then, though, I do believe I was depressed that no one could figure out what was causing the disabling pain that was making me unable to put one foot in front of the other or reach above my head. I was put on an antidepressant, and at first it did nothing.  Then I was put on a different one, then another, and then another, etc., etc., etc. until I had tried every single SSRI out there. I was told that I probably needed to increase the dose. I was put on one of the many that I had tried only on a higher dose. I began to feel extremely energetic. My thoughts began to raise. My mind began to wander. My legs became restless. I felt like I was losing myself. I was getting racing thoughts. My psychologist told me that I must have been diagnosed too soon with depression. I must have bipolar disorder where I have both mania and depression. I was put on a cocktail of drugs for bipolar depression. I got all the manic symptoms under control, and basically the depression was under control too. I felt absolutely nothing! How can you feel nothing when you had been in so much pain before? I knew something was terribly wrong. I can tell you this. I hate being in pain, but I never ever want to feel "nothing" again. I got to a point---here comes another Halloween reference--where I was turned into a living Zombie. I WAS "night of the living dead." I sat and stared for hours. I could no longer drive a car. I lost my concentration so I could not even comprehend a 30 second commercial let alone a 30 minute T.V. show or a 2 hour movie. I couldn't hold a normal conversation because I didn't even feel like I was in the same room as the other person talking with me. I felt like I should have just walked around moaning "brains, brains..." My walk was more of a "cogwheel," and my tongue was stiff when I tried to talk. I even drooled slightly. What had happened to me? Would I ever get through this?

Well, I was misdiagnosed, number one. I never had depression. When I was given an antidepressant, my body had an adverse reaction to it. I had a manic episode caused by the antidepressant. I was never bipolar; the medication that was given to me for the wrong diagnosis caused a severe side effect that mimicked bipolar disorder. The medications for the bipolar disorder never helped the bipolar disorder, they only caused multiple side effects, therefore turning me into a living Zombie!

I moved away to another state. I had no medication left over. I woke up from a terrible curse! Someone cursed me and turned me into a Zombie. When the curse wore off (the meds ran out), I woke up as a whole person again. I had no depression, no mania. You know what I did have? I had a hell of a lot of pain; that's what!  Trick or Treat!

1 comment:

Anonymous said...

That's a pretty scary story, all right! I'm so glad that particular nightmare is over for you! *hugs*

2012

2012
Performance 5 days before my Hip Replacement Surgery!

2012

2012
Performance 5 Days Prior to my Hip Replacement Surgery.

Belly Dance

Belly Dance
Before the Performance 5/6/12
Watch live streaming video from arthritisfoundation at livestream.com