Dancing with My Disabilities!

Title: Dancing with My Disabilities! I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes, you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances, dances hip hop, performs, teaches dance to children of all ages and abilities, teaches belly dance fitness classes to adult women, teaches chair belly dance movement classes to people with mobility issues and disabilities, and takes a Pure Barre class as well! I still have pain, but I want to blog about how I have fun too! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain and being a mom to a 13-year-old son. I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, axial spondylitis, Sjogren's, fibromyalgia, hEDS, POTS, MCAS, vascular/ocular/hemiplegic migraines, pseudotumor cerebri, trigeminal neuralgia, occipital neuralgia, endometriosis, and chronic shingles. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Fourteen years ago, my spine orthopedic surgeon told me I had a small amount of inflammatory arthritis in my SI joint. The question was if the spinal involvement was due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Now, they have an updated term, Axial Spondylitis, which fits my symptoms and diagnostic proof. Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003; my right shoulder replaced in March of 2010. I gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012, and I began belly dancing two years prior to my right hip replacement surgery. Yes that's correct! I began belly dancing in 2010, just after my shoulder replacement, before my son was born. I performed for the first time in 2012, five days prior to my right hip replacement surgery. Pain is still another part of my life. It is just a question of when, where, and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time dancing, teaching, and performing! I began dancing with a troupe in February of 2014, Seshambeh Dance Company. I now take a Pure Barre class on Monday mornings, teach ballet, tap, and creative movement on Monday evenings to children of all ages and abilities, take a hip hop class with all adult women on Tuesdays and Wednesdays, teach a belly dance fitness class on Thursdays to all adult women, and teach a chair belly dance movement class to people with mobility issues and disabilities as often as I possibly can. Join me in my journey! At times, I take 16 to 20 pills a day. I give myself an injection each week on Fridays for my autoimmune/autoinflammatory arthritis diseases. Just when one thing is doing better, something else goes downhill! My attitude, however, is always going uphill! I am 49 years old, have been married for 24 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Blog Title: Dancing with My Disablities!

Formerly Now Read My HIPS, and before that, I Already Gave My Right Arm to Be Ambidextrous.
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Dancing with My Disabilities

Dancing with My Disabilities
Asmara "Beautiful Butterfly"

Blog with Integrity

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Monday, February 28, 2011

Inspiration in The Face of Adversity!


I wanted to share with my followers how important it is to be positive, to keep your faith no matter how hard life may seem, and to remember everything that we experience in life that we learn from can be shared with others so that they can also learn something from it.  No matter how big or how small our experiences are in life, some one out there will find something to take from them to better themselves or others. It can be an incredible feeling to know that one person can have such a huge effect on another, and that effect can be passed on further from one person to another.

When I began blogging, it was because my right shoulder collapsed, and I wanted to share with others my challenge and struggle to wait for it to be replaced. I woke up one morning in October unable to move my right arm because the shoulder had collapsed, and I had to wait until the end of March to have it replaced. I needed to share this with all of you to help me get through the pain, the trials of daily life, and to keep the strength and courage up to make it that long.  I am so glad that I started this blog. I have met some wonderful people online, have realized that there are so many people out there living with chronic pain conditions, and we all need each other to share our stories with to help one another to get through the rough times, to carry on. I first want to thank you all for helping me, and second I'd like to share with you all what someone told me about my story that helped her with her life experience with pain.
Thanks...you have given me inspiration as I've gone through the process of seeing doctors, even getting the second opinion about my shoulder, and getting in a place where I think I am going to get my shoulder "fixed" after nearly 8 months. I've had myofascial spasms for 12 years; we have been calling it and treating it as fibro for the past 2 (I'm on the fibro medications now for pain, and they help a lot).  I cannot imagine the arthritis pain you go through.  Your story of success after shoulder replacement surgery inspires me.  I tore 2 rotator cuffs (the top and "bottom" ones--supraspinatus and subscapularis) while stretching on a stretch bar--one of the morning sretches I had enjoyed for years.  When I got the MRI results several months later after my pain and spasm/guarding in that arm/shoulder had not subsided, I was SHOCKED to read that all 4 of my tendons that make up the shoulder joint were unhealthy, and that 2 were damaged.  I'm an attorney who helps people who have had injuries including by the healthcare establishment or MVAs--so we now laugh because when I got my MRI faxed to me at the office, someone confused it and after reading it over, said "what client is this for????"   Then we realized it was MINE!   Shocking.
Dana...I appreciate your attitude of gratitude, grace and help in the face of adversities.  I think these qualities make you a better candidate as an adoptive parent than many people out there who don't have adversities.  I say this because in my view, your comments...and your response to your health conditions overall, have been so very positive and healthy and strong.  I know you are a Christian...and I am also, so I'll just say--I think that our God is a loving God, and we live in an imperfect world of free will and accidents and all sorts of wildness and imperfection.  In this context, we experience illnesses and pain and losses that we can actually ask God to help us USE to get stronger. You have done this, Dana.  I commend you.  This is the attitude that I aspire to as I face surgery...as well as just every day when I get up and look in the mirror and say "I'm not able to walk in my own shoes today God, so help me out here, ok?  Help me turn this boat around and make it a positive ride, for myself and others, can we?"
For your information, she did have her shoulder surgery, and was recovering well the last time I communicated with her. Also, with her lovely comment in mind about my being a better candidate as an adoptive parent than many others without adversities, my husband and I adopted our first child in December of 2010. It was less than 9 months after my shoulder replacement surgery.  We are so blessed with a beautiful baby boy. He was 4 days old when we picked him up from the hospital. I have to say that my new shoulder came at the perfect time.  I have a brand new shoulder for my brand new baby! Perfect timing! Thank you, God for listening to my prayers--both for the recovery from my surgery and for our son!










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2012

2012
Performance 5 days before my Hip Replacement Surgery!

2012

2012
Performance 5 Days Prior to my Hip Replacement Surgery.

Belly Dance

Belly Dance
Before the Performance 5/6/12
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