I Already Gave My Right Arm To Be Ambidextrous...Now Read My HIPS!

Now Read My HIPS! is returning very soon. My blog is currently under construction. I am doing some minor renovating and will begin blogging for the New Year, possibly before. I can't wait to start up again. I have missed all of my followers! I love every single one of you! You have helped me to become who I am today! I could never have continued my blog without all of your support. Please be patient, and please continue to support this blog as well as my other blog Chronically Mommy. Pass this information on to anyone that you know may be interested in knowing...To be continued...

I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances and performs! I still have pain, but I want to blog about how I have fun too! Now Read My HIPS! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain.

Hi, I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, sjogren's, fibromyalgia, and hypermobility. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Seven years ago my spine orthopaedic surgeon told me I had a small amount of autoimmune arthritis in my SI joint. The question still remains: Is the spinal involvement due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003 & my right shoulder replaced in March of 2010. I literally gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012.

I began belly dancing. Yes that's correct! I began belly dancing in 2010, so now it is time to "read my hips." Pain is still another part of my life. It is just a question of when, where and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time belly dancing and performing! I belong to a dance troupe since February of 2014, Seshambeh Dance Company. I am dancing weekly with my troupe in an advanced class and on Saturdays with another class which focuses on exercise and being a strong woman. I am performing a lot more often now, at least 4 or 5 times per year! Join me in my journey!

At times, I take 16 to 20 pills a day. I go every 4 weeks to the to get a 2 hour IV for my autoimmune arthritis diseases. Just when one thing seems to be doing better, something else goes downhill! My attitude, however, is always going uphill! I am 42 years old, have been married 16 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!



(Formerly "I Already Gave My Right Arm To Be Ambidextrous!")

Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Now Read My HIPS!

Now Read My HIPS!
Asmara "Beautiful Butterfly"

Blog with Integrity

BlogWithIntegrity.com

Monday, September 5, 2011

You are not alone. I am here to stay...

"Lyrics bring tears of joy as well as tears of loss. The rhythm and the beat infectious; I can be distracted from my chronic pain. Use the lyrics and music to embrace the pain and my chronicness. So, my assignment, should I choose to accept it (totally did) is to think about a personal playlist (while Apple works on the imoodpod): what songs inspire, elevate mood, give a shot of energy? And, why these songs – what about those lyrics, that singer/songwriter, band – speaks to me? By sharing – my songs of inspiration, mood improvement (or reflection), anthem(s) to my chronic illness(es), get-me-moving-beats – with other folks dealing with chronic illness(es) and chronic pain, I can open up new worlds of lyrics, musicians, musical styles." This was my entry for the PFAM blog carnival.

I immediately thought to use Michael Jackson for my artist of choice and choose a few of his songs that I feel represent what is going on in my life right now. Michael Jackson suffered a lot, and although he was a public figure, he was a very private person. He suffered from pain. He had trouble sleeping, lost a lot of weight, had what many believe to be arthritis and lupus. He also had a skin condition called vitiligo. He very well may have also been dealing with skin and hair conditions due to the lupus and arthritis as well. We lost a very talented artist, a legend, and someone that we should have probably been spending more time listening to his lyrics than focusing on what he was wearing or what he was covering up under his clothing, his masks and his sunglasses and hats. Who cares about all of that? How the hell did that affect any of us?
We need to Heal Ourselves so we can "Heal The World",




Because "We Are The World"!

We all "Cry"!


We have to start by looking at the "Man In the Mirror" for everything, helping ourselves, others, asking for help, opening up to others, etc.


Many times, all we want to say is "Leave Me Alone!"

"Don't Walk Away"! I'm not done yet. Michael Jackson has always made me feel like dancing. When I was 10 years old, I had a hope chest full of pictures of him because I wanted to marry him, sadly that dream has dissolved...

Michael Jackson has made me feel like dancing, has given me ideas for the best Halloween costumes, has caused people to memorize his dances (ummm, Thriller ring a bell?), and people know his songs from when he was a little tike~ABC as easy as 123...

He has a following that no other musical artist has, was a humanitarian, a father, a dreamer, sensitive, a poet, a loner, sad, likely depressed, in pain, suffering from chronic pain and chronic illness, suffering in silence, alone, and like many of us, afraid to talk about it and wanting to be left alone and instead considered odd and different and weird. Had he stood up for himself, admitting he was sick, becoming an advocate and an activist for those with chronic pain and chronic illness, would it have changed his life at all? I would have to say yes. I don't know for sure, but if you are suffering in silence, don't. Today, you are "gonna make a change for once in [your] life, [it's] gonna feel real good, gonna make a difference, gonna make it right..." Tell others about your health problems, educate them, people jump to conclusions many times and make assumptions because of ignorance and lack of knowledge. It is up to you to let them know about your chronic illness and pain.

"You Are Not Alone."  I will always be here to blog for all of you!!! I love you all. Hugsssss!!!

Walk Team

Walk Team

2012

2012

2012

2012

Belly Dance

Belly Dance
Before the Performance 5/6/12
Watch live streaming video from arthritisfoundation at livestream.com