I Already Gave My Right Arm To Be Ambidextrous!

I Am Already Giving My Right Arm To Be Ambidextrous...

Hi, I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, sjogren's, fibromyalgia, and hypermobility. I just found out that I have severe autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Three years ago my spine orthopaedic surgeon told me I had a small amount of autoimmune arthritis in my SI joint. The question still remains: Is the spinal involvement due to Psoriatic Spondylitis, which is a rare more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003, and then I had my right shoulder replaced in March of 2010. I literally gave my right arm to be ambidextrous! LOL! Now I am awaiting yet another joint replacement~my right hip. My surgery is scheduled for May 10th, 2012. Pain is just another part of my life. It is just a question of when, where and how much. At times, I take 16 to 20 pills a day. I go every 4 weeks to the infusion center at the hospital to get a 2 hour IV for my autoimmune arthritis diseases. Just when one thing seems to be doing better, something else goes downhill! My attitude, however, is always going uphill! I am 37 years old, have been married 11 years, and my husband and I have adopted our first child in Dec. 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Monday, September 5, 2011

You are not alone. I am here to stay...

"Lyrics bring tears of joy as well as tears of loss. The rhythm and the beat infectious; I can be distracted from my chronic pain. Use the lyrics and music to embrace the pain and my chronicness. So, my assignment, should I choose to accept it (totally did) is to think about a personal playlist (while Apple works on the imoodpod): what songs inspire, elevate mood, give a shot of energy? And, why these songs – what about those lyrics, that singer/songwriter, band – speaks to me? By sharing – my songs of inspiration, mood improvement (or reflection), anthem(s) to my chronic illness(es), get-me-moving-beats – with other folks dealing with chronic illness(es) and chronic pain, I can open up new worlds of lyrics, musicians, musical styles." This was my entry for the PFAM blog carnival.

I immediately thought to use Michael Jackson for my artist of choice and choose a few of his songs that I feel represent what is going on in my life right now. Michael Jackson suffered a lot, and although he was a public figure, he was a very private person. He suffered from pain. He had trouble sleeping, lost a lot of weight, had what many believe to be arthritis and lupus. He also had a skin condition called vitiligo. He very well may have also been dealing with skin and hair conditions due to the lupus and arthritis as well. We lost a very talented artist, a legend, and someone that we should have probably been spending more time listening to his lyrics than focusing on what he was wearing or what he was covering up under his clothing, his masks and his sunglasses and hats. Who cares about all of that? How the hell did that affect any of us?
We need to Heal Ourselves so we can "Heal The World",




Because "We Are The World"!

We all "Cry"!


We have to start by looking at the "Man In the Mirror" for everything, helping ourselves, others, asking for help, opening up to others, etc.


Many times, all we want to say is "Leave Me Alone!"

"Don't Walk Away"! I'm not done yet. Michael Jackson has always made me feel like dancing. When I was 10 years old, I had a hope chest full of pictures of him because I wanted to marry him, sadly that dream has dissolved...

Michael Jackson has made me feel like dancing, has given me ideas for the best Halloween costumes, has caused people to memorize his dances (ummm, Thriller ring a bell?), and people know his songs from when he was a little tike~ABC as easy as 123...

He has a following that no other musical artist has, was a humanitarian, a father, a dreamer, sensitive, a poet, a loner, sad, likely depressed, in pain, suffering from chronic pain and chronic illness, suffering in silence, alone, and like many of us, afraid to talk about it and wanting to be left alone and instead considered odd and different and weird. Had he stood up for himself, admitting he was sick, becoming an advocate and an activist for those with chronic pain and chronic illness, would it have changed his life at all? I would have to say yes. I don't know for sure, but if you are suffering in silence, don't. Today, you are "gonna make a change for once in [your] life, [it's] gonna feel real good, gonna make a difference, gonna make it right..." Tell others about your health problems, educate them, people jump to conclusions many times and make assumptions because of ignorance and lack of knowledge. It is up to you to let them know about your chronic illness and pain.

"You Are Not Alone."  I will always be here to blog for all of you!!! I love you all. Hugsssss!!!