I Already Gave My Right Arm To Be Ambidextrous...Now Read My HIPS!

Now Read My HIPS! is returning very soon. My blog is currently under construction. I am doing some minor renovating and will begin blogging for the New Year, possibly before. I can't wait to start up again. I have missed all of my followers! I love every single one of you! You have helped me to become who I am today! I could never have continued my blog without all of your support. Please be patient, and please continue to support this blog as well as my other blog Chronically Mommy. Pass this information on to anyone that you know may be interested in knowing...To be continued...

I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances and performs! I still have pain, but I want to blog about how I have fun too! Now Read My HIPS! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain.

Hi, I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, sjogren's, fibromyalgia, and hypermobility. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Seven years ago my spine orthopaedic surgeon told me I had a small amount of autoimmune arthritis in my SI joint. The question still remains: Is the spinal involvement due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003 & my right shoulder replaced in March of 2010. I literally gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012.

I began belly dancing. Yes that's correct! I began belly dancing in 2010, so now it is time to "read my hips." Pain is still another part of my life. It is just a question of when, where and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time belly dancing and performing! I belong to a dance troupe since February of 2014, Seshambeh Dance Company. I am dancing weekly with my troupe in an advanced class and on Saturdays with another class which focuses on exercise and being a strong woman. I am performing a lot more often now, at least 4 or 5 times per year! Join me in my journey!

At times, I take 16 to 20 pills a day. I go every 4 weeks to the to get a 2 hour IV for my autoimmune arthritis diseases. Just when one thing seems to be doing better, something else goes downhill! My attitude, however, is always going uphill! I am 42 years old, have been married 16 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!



(Formerly "I Already Gave My Right Arm To Be Ambidextrous!")

Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Now Read My HIPS!

Now Read My HIPS!
Asmara "Beautiful Butterfly"

Blog with Integrity

BlogWithIntegrity.com

Monday, February 28, 2011

Our Health Care System

(Publish date: September 7, 2010), and the theme is: Health care reform. Everyone has an opinion. What's yours? We want to hear all about your experience, what you hope will happen, what you think will actually happen. I did not enter my post in time, but I did write it. I did not publish my post though until months later due to personal situations. I have a link to the Health Care Reform Chronic Babe Blog Carnival for you to read the blog posts that were published. Please read them!


OMG! Health care reform! It is so important, and yet, I believe we may never come to a decision that will be able to help everyone equally or at the very least make everyone equally happy. I do have my own opinions on the health care reform situation. I believe that there is a desperate need for change, I believe that for those who have good insurance already it's scary for them to change anything, I also believe that for those that have no insurance or expensive insurance or the dreaded HMO's that need referrals and can only pick doctors, etc. from a list as well as for those on government aid of some kind, it is scary for them already unless changes do occur and soon. People with the good insurance that already have everything covered and can see any doctors they want, etc., they fear that changing anything will take away from what they already have. They don't want to have to wait longer than the usual wait to see specialists or to have surgery, etc. Those with anything less than good insurance fear that they may need a specialist or surgery, and they will have to wait a long time, perhaps too long, and their health may worsen or the procedures may become more expensive or too expensive to perform.  Death is feared the outcome for some of those people with chronic conditions or with a terminal condition.  It is all so overwhelming!

I must admit, I'm not the right person to blog about this topic probably. I have been very fortunate. I have been able to use my husband's insurance through his job which has not considered anything pre-existing. If I were to try to get my own insurance, I would be turned down instantly because of pre-existing conditions. I could always go on Medicare, but I fear that the doctors, hospitals and treatments would be less appealing and worse still, not as good at treating my conditions.  I know for a fact that my shoulder surgeon doesn't take Medicare, so I would not get the best shoulder surgeon in my area to do any further shoulder surgeries because of that.  I find that scary for me.  Then I think about the whole picture, everyone else. I don't think it's fair that I already get top of the line health care, and others do not. Others are still waiting to be able to go to any doctor or hospital they want.  That should be a human right to choose your own doctor or hospital rather than have your insurance choose it for you.  So for those that have never had that right, I feel terrible that I have never had to think twice about it.  For those that have no insurance at all, it would be so scary to know you have been diagnosed with a condition that will require much needed medical care, surgeries and other treatments. The financial side of that could be extremely detrimental to a lot of people.

I do believe in equal rights to all people, and health care should be included in that. I believe that there are just some things that should not only be considered privileges, but rather human rights for all people.  It shouldn't be a question whether a person can afford it or not, has a job or not, has a job that will pay for it or not, etc.  Every man, woman and child should have the right to equal health care.  I don't know that I believe it should be forced on everyone though. Of course, those same people that complain about having universal health care/insurance should not complain when they end up with a chronic illness, a debilitating illness, or a terminal illness and then want the health care/insurance that was once "forced" upon them. I think it is something that you have to think about long and hard. If you are going to turn it down, ask yourself that question, "what if I end up with a serious illness that requires me to have health care/insurance?" There is no way of knowing ahead of time what may happen in the future when it comes to a person's health.

I can say also that the idea of getting rid of pre-existing conditions is a great idea and will help out a lot of us with chronic illnesses. Many of us also have more than one! I for one have several! I have been saying for years that one of my biggest fears is that my hubby will get a job where they will not cover me, and I will be unable to get insurance on my own unless it is Medicare. With Medicare, there are several of my meds that are not covered under the prescription plan. My out of pocket expenses would be huge!

I have not read the entire health care reform bill, so I do not know everything that is on there to change, get rid of and/or add.  I can just express my opinions, concerns and fears. I am not a very political person, but I am a person living with chronic illnesses, and I am a person who is an RN with a BSN so I am educated and experienced in our health care system. I truly believe that the most important thing to keep in mind is that every change, any small addition and all things taken from the health care bill will affect someone in some way or another. If we keep that in mind, I think we will be able to come to some agreement in coming up with a health care reform bill.  I think that truly that is the only way we will ever come up with a universal and equal health care system!

No comments:

Walk Team

Walk Team

2012

2012

2012

2012

Belly Dance

Belly Dance
Before the Performance 5/6/12
Watch live streaming video from arthritisfoundation at livestream.com