Dancing with My Disabilities!

Title: Dancing with My Disabilities! I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes, you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances, dances hip hop, performs, teaches dance to children of all ages and abilities, teaches belly dance fitness classes to adult women, teaches chair belly dance movement classes to people with mobility issues and disabilities, and takes a Pure Barre class as well! I still have pain, but I want to blog about how I have fun too! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain and being a mom to a 13-year-old son. I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, axial spondylitis, Sjogren's, fibromyalgia, hEDS, POTS, MCAS, vascular/ocular/hemiplegic migraines, pseudotumor cerebri, trigeminal neuralgia, occipital neuralgia, endometriosis, and chronic shingles. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Fourteen years ago, my spine orthopedic surgeon told me I had a small amount of inflammatory arthritis in my SI joint. The question was if the spinal involvement was due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Now, they have an updated term, Axial Spondylitis, which fits my symptoms and diagnostic proof. Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003; my right shoulder replaced in March of 2010. I gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012, and I began belly dancing two years prior to my right hip replacement surgery. Yes that's correct! I began belly dancing in 2010, just after my shoulder replacement, before my son was born. I performed for the first time in 2012, five days prior to my right hip replacement surgery. Pain is still another part of my life. It is just a question of when, where, and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time dancing, teaching, and performing! I began dancing with a troupe in February of 2014, Seshambeh Dance Company. I now take a Pure Barre class on Monday mornings, teach ballet, tap, and creative movement on Monday evenings to children of all ages and abilities, take a hip hop class with all adult women on Tuesdays and Wednesdays, teach a belly dance fitness class on Thursdays to all adult women, and teach a chair belly dance movement class to people with mobility issues and disabilities as often as I possibly can. Join me in my journey! At times, I take 16 to 20 pills a day. I give myself an injection each week on Fridays for my autoimmune/autoinflammatory arthritis diseases. Just when one thing is doing better, something else goes downhill! My attitude, however, is always going uphill! I am 49 years old, have been married for 24 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Blog Title: Dancing with My Disablities!

Formerly Now Read My HIPS, and before that, I Already Gave My Right Arm to Be Ambidextrous.
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Dancing with My Disabilities

Dancing with My Disabilities
Asmara "Beautiful Butterfly"

Blog with Integrity

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Sunday, June 13, 2010

When I was first told about the theme being Passion, my mind automatically went to what everyone's goes to...a strong sexual desire...

This edition of Chronic Babe's Blog Carnival went live on June 15, 2010, and the theme is Passion. We would love to hear your thoughts on the topic, which really, could go in any direction!Check out the rest of the Chronic Babe's Blogs!


Hmmm...When I was first told about the theme being Passion, my mind automatically went to what everyone's  goes to...a strong sexual desire...

When you look the word "passion" up in the dictionary, it says,

1. A powerful emotion, such as love, joy, hatred, or anger.
2. 
    a. Ardent love.
    b. Strong sexual desire; lust.
    c. The object of such love or desire.
3.
    a. Boundless enthusiasm.
    b. The object of such enthusiasm.
4. An abandoned display of emotion, especially of anger.

I think when you are talking about someone with a chronic disease or illness, and you ask them to write about their passion, you will get so many answers as well a so many ways to answer it. For me, passion can be used as a powerful, intense emotion. Richard Brinsley Sheridan wrote, "There is not a passion so strongly rooted in the human heart as envy."  I also have passion in my life that is a burning fire, as Oliver Wendell Holmes, Jr. said, "In our youth our hearts were touched with fire [passion].Passion can be a feeling of love for another person, or an intense feeling of love for something. And passion is commonly called zeal when we speak of a strong, enthusiastic devotion to a cause, ideal, or goal and tireless diligence in its furtherance. "Laurie [resolved], with a glow of philanthropic zeal [passion], to found and endow an institution for ... women with artistic tendencies" (Louisa May Alcott). So synonyms for passion are fervor, fire, zeal,  and ardor.

I, of course, have a burning passion for my husband. We just had our 10th anniversary on June 10th, 2010, so how fitting it is to speak of passion. Now, we may not have a sex life that others would necessarily describe as "strong" or "sexual," but there is a fire, I swear. After 10 years of marriage, there is still that spark.  Don't worry, I'm not going to go into detail, but although we can't do what healthy couples can in the bedroom, we definitely make do.

Also, I have a passion for my husband that is a love like nothing I've ever felt for another human being. It is a love that so intense, that I would give my life for him.  Now that is the definition of passion. I also have a passion, a love for the environment, for this world. I don't want people to ruin it. This is it people; it's all we have, take care of it! I have a deep connection to people, animals, trees, plants, God, the angels, my spirit guides, and all things that have energy--which is every single thing. Everything has energy, so ever single thing is connected. I feel that connection. I have a special passion for all of those things, God's creation!

Then, there is the passion for a cause. I think that this is pretty self-explanatory. If you or someone you are close to have/has a certain disease or illness, you want to fight for a cure, a treatment or for more research to understand it more.  Everyone out there who has chronic pain from arthritis, fibromyalgia, cancer, etc. wants to find a cure, wants to help those that are in pain like them, wants to support people with the same or similar issues. It becomes a tireless, diligent fight, an endless battle, a passion!  I support causes such as: arthritis, fibromyalgia, AVN, chronic pain, saving the planet, saving the animals, conservation, anything that helps children, and also any cause that will help us to keep our minds open, to reach a higher consciousness, to understand our purpose here, so that this world can achieve a balance of energy and truly be healed!

So this is a list of things that I have a passion for:                              
1. The environment.                                                                         
2. Animals.                                                                                      
3. Unity.
4. Acceptance.
5. Spiritualism.
6. Life.
7. Family.
8. Healing.
9. Friendship.
10. Prayer.
11. My Many Causes.
12. God.
13. My Angels.
14. My Spirit Guides.
15. The Arts: Dance, Music, Poetry, Painting, etc.
16. Food.
17. Water.
18. Writing.
19. Reading.
20. Swimming.




This is a list of what [who] I have a burning passion for:
1. My Husband.
2. My Baby That We Will Adopt Someday. 
3. Max and Cookie "Buddy" (Our Fur Kids). They Are 10 And 13 Years Old.


6 comments:

Carol Lawrence And Stacy Toten said...

Great job! Love your passion list!
I would have to add my pets, my Montana (my ashes will be spread here, my family and friends.
Signing up as a follower!

Dana Asmara Morningstar-Marton said...

Yes, I agree. I have my fur kids listed as my burning passion--in the second list. My family is listed in the first list and friendship as well. I did not list one particular place, as I love so many places, but I think I would want my ashes spread over water!

Thanks for following me!

Migrainista said...

You are a blessed woman.

Rachel said...

Happy anniversary :)

And yes, that is quite the passion list..

Carly Findlay said...

This is a great post - happy anniversary, too.
You are so honest and open in this post, I admire you.

Shalunya said...

I always love reading your blog and I wanted to make sure I told you so!!! I am passing the Versatile Bloggers Award onto you. check it out at http://gypsyshalunya.blogspot.com/2010/07/versatile-bloggers-award.html

2012

2012
Performance 5 days before my Hip Replacement Surgery!

2012

2012
Performance 5 Days Prior to my Hip Replacement Surgery.

Belly Dance

Belly Dance
Before the Performance 5/6/12
Watch live streaming video from arthritisfoundation at livestream.com