Dancing with My Disabilities!

Title: Dancing with My Disabilities! I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes, you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances, dances hip hop, performs, teaches dance to children of all ages and abilities, teaches belly dance fitness classes to adult women, teaches chair belly dance movement classes to people with mobility issues and disabilities, and takes a Pure Barre class as well! I still have pain, but I want to blog about how I have fun too! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain and being a mom to a 13-year-old son. I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, axial spondylitis, Sjogren's, fibromyalgia, hEDS, POTS, MCAS, vascular/ocular/hemiplegic migraines, pseudotumor cerebri, trigeminal neuralgia, occipital neuralgia, endometriosis, and chronic shingles. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Fourteen years ago, my spine orthopedic surgeon told me I had a small amount of inflammatory arthritis in my SI joint. The question was if the spinal involvement was due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Now, they have an updated term, Axial Spondylitis, which fits my symptoms and diagnostic proof. Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003; my right shoulder replaced in March of 2010. I gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012, and I began belly dancing two years prior to my right hip replacement surgery. Yes that's correct! I began belly dancing in 2010, just after my shoulder replacement, before my son was born. I performed for the first time in 2012, five days prior to my right hip replacement surgery. Pain is still another part of my life. It is just a question of when, where, and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time dancing, teaching, and performing! I began dancing with a troupe in February of 2014, Seshambeh Dance Company. I now take a Pure Barre class on Monday mornings, teach ballet, tap, and creative movement on Monday evenings to children of all ages and abilities, take a hip hop class with all adult women on Tuesdays and Wednesdays, teach a belly dance fitness class on Thursdays to all adult women, and teach a chair belly dance movement class to people with mobility issues and disabilities as often as I possibly can. Join me in my journey! At times, I take 16 to 20 pills a day. I give myself an injection each week on Fridays for my autoimmune/autoinflammatory arthritis diseases. Just when one thing is doing better, something else goes downhill! My attitude, however, is always going uphill! I am 49 years old, have been married for 24 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Blog Title: Dancing with My Disablities!

Formerly Now Read My HIPS, and before that, I Already Gave My Right Arm to Be Ambidextrous.
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Dancing with My Disabilities

Dancing with My Disabilities
Asmara "Beautiful Butterfly"

Blog with Integrity

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Wednesday, March 24, 2010

I Ask God Today For Strength...Oh, And By The Way, Could You Also Take My Pain Away If You Have The Time?

Oh my, it is one of those days, where it hurts too badly to get out of bad, but too much to stay in bed!  I HATE these kind of days.  Why am I having a day like this, on a day like this?  It seems like it is going to be a gorgeous day today.  The sun is shining, the air is still, and it isn't as cold as it's been lately. And yet, I am having THE WORST DAY that I've had in a long time.

Ya know, on a day like this, the first part of my day is to ask my God to please give me strength. To ask for strength is a big thing.  I need strength to get out of bed, to get myself dressed, to take the fur kids outside, to bend over to clean up after them outside, to feed them, to draw up Max's insulin, to inject his insulin, to make my breakfast, to clean off my plate, and to get myself to look at least "presentable" before I step out the door to face the day.  I ask God for strength as I try to hold my throbbing hands on the steering wheel. I ask for strength as I feel the tears build up, when I realize I can't reach with my right arm to change the radio station. I forgot for a brief moment, as I do sometimes first thing in the morning, that my right shoulder had collapsed. I ask God to give me strength as a small amount of anxiety begins to build up inside of me as I remember that in 5 days, I am going to have a very serious and invasive shoulder replacement surgery. I take a deep cleansing breath, and suddenly realize that today is one of thoe days that I definitely need 2 deep cleansing breaths, so I allow myself to take another. And I put the car in drive and off I go to start my day!

Strength is an important power to have over yourself, your day, your body, (I tend to separate myself from my body, especially on very painful days, because I am not my disease, and my disease has taken over my body, but it has not taken over ME!) what you say, what you do, and what you choose in life or just on a particular day or moment.  Strength is a wonderful power and quality to attain.  I believe you don't just have strength. You have to work for it, ask for it, and be rewarded with it.  God will give it to you, but it will not be handed to you wrapped in a pretty box.  In order to get strength, you must be faced with struggles, fears, or something that you have to face head-on.  If you are able to overcome it, fight it and win, or walk away without avoiding it, you have gracefully accepted the gift of strength.

Today, I am moving, and continuing with my day head-on! I am not giving up. I am not crawling into bed and whining about the pain.  I am taking a hot bath, exercising my joints, praying to God, massaging my joints,etc. I am trying to overcome my worst enemy--PAIN.  I know that by the end of the day, I will have received a beautiful package from God with love filled with strength, that I worked so hard to receive.

So when I ask for God to also take the pain away if he has the time, eventually, the pain does get better. I know that if I stay strong and stand up to the pain, it will go into hiding.  I like to add a little humor, even talking with God. I am not a God-fearing person. I believe that he is a humorous God.  I think that a good laugh always help to get rid of some of the pain, and God can always join in the laughter.  God is always with me, and we are great friends. He is my father, my brother, my friend. She is my mother, my sister, my friend as well. I see God as a Father figure as a male, but I also see God as a female. I tend to pray to God, the female when I need help in an emotional sense. If I need help with a family problem, with self-discovery and spirituality, and things that are more personal, God is a female to me. When I ask for strength to get through pain and discomfort or something that I would ask my dad for help with, I see God as a male.  So for help with the whole pain and strength, I see God as a father-figure.  When I want to just talk to someone, for encouragement and love, I talk to my female friend, God. But God as a whole is humorous overall, and has a sense of humor.

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2012

2012
Performance 5 days before my Hip Replacement Surgery!

2012

2012
Performance 5 Days Prior to my Hip Replacement Surgery.

Belly Dance

Belly Dance
Before the Performance 5/6/12
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