I Already Gave My Right Arm To Be Ambidextrous...Now Read My HIPS!

Now Read My HIPS! is returning very soon. My blog is currently under construction. I am doing some minor renovating and will begin blogging for the New Year, possibly before. I can't wait to start up again. I have missed all of my followers! I love every single one of you! You have helped me to become who I am today! I could never have continued my blog without all of your support. Please be patient, and please continue to support this blog as well as my other blog Chronically Mommy. Pass this information on to anyone that you know may be interested in knowing...To be continued...

I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances and performs! I still have pain, but I want to blog about how I have fun too! Now Read My HIPS! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain.

Hi, I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, sjogren's, fibromyalgia, and hypermobility. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Seven years ago my spine orthopaedic surgeon told me I had a small amount of autoimmune arthritis in my SI joint. The question still remains: Is the spinal involvement due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003 & my right shoulder replaced in March of 2010. I literally gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012.

I began belly dancing. Yes that's correct! I began belly dancing in 2010, so now it is time to "read my hips." Pain is still another part of my life. It is just a question of when, where and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time belly dancing and performing! I belong to a dance troupe since February of 2014, Seshambeh Dance Company. I am dancing weekly with my troupe in an advanced class and on Saturdays with another class which focuses on exercise and being a strong woman. I am performing a lot more often now, at least 4 or 5 times per year! Join me in my journey!

At times, I take 16 to 20 pills a day. I go every 4 weeks to the to get a 2 hour IV for my autoimmune arthritis diseases. Just when one thing seems to be doing better, something else goes downhill! My attitude, however, is always going uphill! I am 42 years old, have been married 16 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!



(Formerly "I Already Gave My Right Arm To Be Ambidextrous!")

Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Now Read My HIPS!

Now Read My HIPS!
Asmara "Beautiful Butterfly"

Blog with Integrity

BlogWithIntegrity.com

Friday, February 19, 2010

When Life Gives You Lemons...

 
Welcome to the July Pain-Blog Carnival for How To Cope With Pain, some of this month’s great writing related to pain from other blogs and websites.  I hope you enjoy the selections! Mine was one of them!

I'm sure you've heard that before: When life gives you lemons, make lemonade...Well after a while, can there just be too damn many lemons?!? I mean, eventually, there is just no room for lemonade, or what if you don't even like lemonade? I actually don't really like lemonade. I like lemons themselves in tea or water or to clean with, but still, when they are basically flying at you and falling from the sky, and you don't know what to do with the damn lemons anymore, you have just had enough already, right?

OK, maybe lemons are just not a good analogy...

What I'm trying to get at, or basically just trying to say is that I have reached my breaking point. I can no longer make lemonade out of what has been given to me. Now, I'm a positive person, so this is hard to do to me. How did I get to this point?...Well, it seemed like each year I was diagnosed with 1 or 2 or 3 new diseases. I could handle that. Then we had to get the diseases treated. I could handle that. Then we had to get the diseases under control. I could handle that. Then the diseases would get out of control at different times. I could handle that. What I'm finding hard to handle is when they all start to get out of control at one time! That is what I'm finding hard, no wait, IMPOSSIBLE to deal with!!!!

The fibromyalgia gets under control for a while, but it flares just as my right shoulder collapses from the avascular necrosis. I have to stop using my cane for my right hip because my fingers decide to get all f***ed up at the same time!!! Meanwhile, my ankles become cankles! How the hell did that happen!!! They have swollen up so badly that I have no ankles anymore--crazy shit right? Oh and what about my elbows. They just don't work anymore. And my neck, that is of no use to me anymore. My lower back--the list goes on and on.......

So, today I go to see the rheumatologist. He looks at my fingers and tells me that I'm overdoing things, that I just can't do as much as I used to do when I was healthy, when I was NORMAL is what his brain was telling me. I'm not a normal person anymore. I KNOW that! I just don't always admit it to myself or to others, and I don't always accept it either. I think they call it DENIAL!! I'm not always in denial though. I go in and out of it. It is a state of mind for me. Most of the time, I completely understand and work within my limitations. Those other less often times, I set my goals and expectations extremely high. What happens is that I reach them just once and I'm done for. Once I reach them, I think I can do it again and quite possibly again. That is when I get into trouble with myself. That is when I cause problems with my body fighting back, and it's World War III inside and outside of my body, yes, yours truly!

Why do I do this to myself? I was just telling my friend yesterday that people with chronic illnesses, especially those that involve pain and arthritis, are the most stubborn people I know. I'm allowed to say this because I'm at the top of that list. I am so stubborn, type A personality, an overachiever, and a control freak! So isn't it strange that we would be the ones that would end up with a disease that forces us to give things up, makes us stay in bed, and stops us dead in our tracks? Or maybe it isn't that strange after all...Nothing a shot in the ass can't fix!!! Well, it can't hurt anyway. LOL!

1 comment:

Evelyn ecorsini@inflexxion.com said...

Hi Dana, I like what you wrote a lot. It is funny and real. You write well. I manage content for a couple of web sites and I am interested in having material on young adults with chronic pain making the decision to become parents. If this interests you, please contact me. Thanks.

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