Dancing with My Disabilities!

Title: Dancing with My Disabilities! I had my shoulder and both hips replaced, and I am changing things up a bit on this blog! I began belly dancing in 2010! Yes, you read that correctly!! I am going to be blogging about my experience as a woman with several joint diseases and conditions who had her shoulder and both hips replaced who now belly dances, dances hip hop, performs, teaches dance to children of all ages and abilities, teaches belly dance fitness classes to adult women, teaches chair belly dance movement classes to people with mobility issues and disabilities, and takes a Pure Barre class as well! I still have pain, but I want to blog about how I have fun too! Please read Chronically Mommy (chronicallymommy.blogspot.com) for info on health/pain and being a mom to a 13-year-old son. I have avascular necrosis in my shoulders, hips, and knees, psoriatic arthritis, axial spondylitis, Sjogren's, fibromyalgia, hEDS, POTS, MCAS, vascular/ocular/hemiplegic migraines, pseudotumor cerebri, trigeminal neuralgia, occipital neuralgia, endometriosis, and chronic shingles. I found out that I have autoimmune arthritis in my cervical spine and a bulging disk in my lumbar spine. Fourteen years ago, my spine orthopedic surgeon told me I had a small amount of inflammatory arthritis in my SI joint. The question was if the spinal involvement was due to Psoriatic Spondylitis, which is a more severe form of Psoriatic Arthritis or is it a new diagnosis of Ankylosing Spondylitis? Now, they have an updated term, Axial Spondylitis, which fits my symptoms and diagnostic proof. Whatever the diagnosis, the treatment will remain the same. I had my left hip replaced in 2003; my right shoulder replaced in March of 2010. I gave my right arm to be ambidextrous! LOL! Lastly, I had my right hip replaced on May 10th, 2012, and I began belly dancing two years prior to my right hip replacement surgery. Yes that's correct! I began belly dancing in 2010, just after my shoulder replacement, before my son was born. I performed for the first time in 2012, five days prior to my right hip replacement surgery. Pain is still another part of my life. It is just a question of when, where, and how much, but I would like to use this blog to write about my experience as a woman with several joint diseases and conditions who had both hips and a shoulder replaced and now spends her free time dancing, teaching, and performing! I began dancing with a troupe in February of 2014, Seshambeh Dance Company. I now take a Pure Barre class on Monday mornings, teach ballet, tap, and creative movement on Monday evenings to children of all ages and abilities, take a hip hop class with all adult women on Tuesdays and Wednesdays, teach a belly dance fitness class on Thursdays to all adult women, and teach a chair belly dance movement class to people with mobility issues and disabilities as often as I possibly can. Join me in my journey! At times, I take 16 to 20 pills a day. I give myself an injection each week on Fridays for my autoimmune/autoinflammatory arthritis diseases. Just when one thing is doing better, something else goes downhill! My attitude, however, is always going uphill! I am 49 years old, have been married for 24 years, and my husband and I adopted Mick in Dec. of 2010! I have a lot on my plate right now, but I take it one moment at a time. I believe that God will never give me more than I can handle. However, I do need to learn to ask for help sometimes instead of always doing it by myself!

Blog Title: Dancing with My Disablities!

Formerly Now Read My HIPS, and before that, I Already Gave My Right Arm to Be Ambidextrous.
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me, help me, help me, oh.

Dancing with My Disabilities

Dancing with My Disabilities
Asmara "Beautiful Butterfly"

Blog with Integrity

BlogWithIntegrity.com
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Monday, February 1, 2010

So Far Away...


I keep telling myself, it will be here before I know it. But wow, March 29th is a long time away. Not only is the surgery a long time away, but I have no family living close except my husband. I am having some family come in town to help out, but I really hate asking for help. I feel like I was able to get through a total hip replacement before with no help by family, so I should be able to get through this. But then I feel like that wouldn't be very fair to my husband now would it?

He is a wonderful caregiver/caretaker. Boy can I tell you some stories about my hip replacement. He had to do things for me that are never mentioned in your vows. Well, maybe loosely when you say "in sickness and in health" and stuff like that. Who would have thought that sickness would have included a brand-spankin' new state-of-the-art hip, titanium and ceramic, top of the line--set the insurance company back about $26,000. Now, off the subject a bit, does that mean that my net worth goes up? Just a question. So with this lovely new hip comes a not so top of the line walker. I did not get the best of its kind. I got the least expensive, fold-down type to be able to put in the back seat or trunk for easy travel. So back to what Jim never knew he was getting himself into...

Here I am just 48 hours post-op, and the surgeon discharges me to home. I was ecstatic. About what? Well, home I guess. But I wasn't gonna sleep in my own bed because I couldn't make it up the steps to the second floor to get to our bedroom. Instead, I got to sleep in our wonderfully uncomfortable sofabed. Also, something to look forward to was the fact that we did not have a full bath on the first floor, so no shower for me for a while, quite a while. Turns out, it took me a long time to rehab my way up those steps to the second floor. I had a lot of sponge baths. They are just not that sexy when given at home by your husband after 3 and a half years of marriage when you just had a total hip replacement at age 29 years. There is just nothing sexy about that. Jim did help me wash my hair in a water basin. He somehow thought that he could just shampoo my hair, and towel dry it, and then just comb or brush through it without any problems. Well, he learned really quickly that a woman needs conditioner, lots of conditioner! Wow, he thought, I can brush through that stuff you call hair finally!

Then after I mastered going up the steps, one step at a time, not alternating feet. Right foot, then left foot to the same step!!!!!! Yeah, I was getting nowhere fast! I finally made it to the second floor. Now I was going to get a long deserved shower. I had to have a chair placed in the shower because I couldn't stand for that long. So the question came out of my mouth. Do you think you could shave my legs? He thought about it. Why would I need to have my legs shaved? Was it for him; he didn't care if I looked like an orangatang. I think it was more for me. I just wanted to feel feminine again. So he reluctantly said yes. He took off his clothes and squeezed into our tiny stand up shower stall. Then, he slid down the shower wall until he was sitting on the ground. Then, he was literally squatting on the shower floor with my Intuition razor. He shaved my legs while the shower sprayed him in the face. He was clearly uncomfortable, but he continued to shave my legs everytime I asked him for about 4 months.

After that I came up with an incredibly amazing invention, which Intuition should totally patent. I bought a sponge with a handle and cut off the sponge. Then I took the Intuition razor and used about 5 hair rubberbands and wrapped them around the handle to apply the razor to the handle. Voila! An Intuition razor on a stick!!! Perfect for those hard to reach areas, like legs! For me, I couldn't reach anything yet.

I couldn't even sit comfortably at the kitchen table yet. I felt like when I sat at the table and leaned forward to eat something off my plate, that my hip wouldn't allow me to bend that way yet. So, it took me forever to feel comfortable, both physically and psychologically, to go out to eat at a restaurant. I felt like I needed to sit all the way up toward the table and have something propped against my back. That way, I would never have to actually lean forward. I was already forward and leaned over my plate. My hips didn't have to move at all.

So for me, to revisit a replacement surgery, makes me revisit every single part of that first surgery--smells, tastes, feelings. It is hard to be in pain. But it is also hard to kind of know what to expect, and fear that all over again.

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2012

2012
Performance 5 days before my Hip Replacement Surgery!

2012

2012
Performance 5 Days Prior to my Hip Replacement Surgery.

Belly Dance

Belly Dance
Before the Performance 5/6/12
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